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Wednesday, May 17, 2017
Wednesday's Wisdom: NF Awareness Day
One individual out of every three or four thousand folks has Neurofibromatosis (NF). I happen to be one of those three or four thousand people. As a web-base article states NF is "a genetic disorder in which benign tumors grow within the nervous system. These tumors could be anywhere in the body, including the brain, and spine but not limited to the feet..." (NF is the abbreviation for Neurofibromatosis, which is quite appropriate, for having NF is NOT FUN.)
My experiences with how people have treated me as result of having this condition have often been more painful than the tumors, which is something you may have surmised, dear reader, if you have read my Blogger entries re this subject. Additionally, a number of years ago I wrote a book length piece about the inner experiences of having NF in hopes of raising awareness about this condition.
I mention NF today as the month of May is dedicated to enlightening others about NF and May17th is World Awareness Day for NF. From the encounters I gave had with others as a result of my having NF, there is a lot to be done. Raising awareness is one aspect, but teaching people not to be cruel is going to take a long, long time.